By Irene Vigo
Since the inception of
The Americans with Disabilities Act,
which became federal law in 1990, there
has been some change in the mind set of
how we view people with disabilities.
When I was in college, the
transformation was apparent in the
language we used when we referred to
persons with a disability. It was no
longer politically correct or accurate
to refer to someone with a disability in
a derogatory manner.
I entered a program,
which was initially a certificate
program, and then became an associates
degree program specifically designed to
educate and positively project persons
with disabilities. It was integral to
the professor of the program and to the
members of our organizational club to
definitively provide education
throughout the community as well as to
our academic peers. It was no simple
task as many people still had their
misconceptions and dismal view of people
who had either a physical or mental
disability.
The question was
consistently raised as to quality of
life. In other words, what type of
quality of life can an individual truly
have if they have a disability? The word
itself holds a somewhat negative
connotation as does handicapped.
There is no question that
there are at times diverse and extensive
measures to which a person with a
disability must extend themselves. What
may be deemed as simple tasks such as
getting up and getting dressed, making a
meal or running errands is without
question something that will require
more time and planning. However, it
should not imply that it could not be
accomplished.
As to quality of life, I
have met many people with varying
degrees of disabilities whose overall
perspective and outlook on life is more
optimistic than my own and in all
probability than many people we know.
Quality of life is dependant upon
one’s outlook and the goals and
accomplishments a person has been
successful in achieving. I was fortunate
enough to have the opportunity to meet
with two truly remarkable people who
provide an extremely important service
and voice to individuals who have a
disability, are cancer patients and
survivors.
Jay and Lynell operate
the personal disability voice chat.
There is no charge to join this group
and potential members as well as
advocates are urged to sign up. Anyone
that does so can request a free personal
disability voice chat tee shirt, which
are very comfortable I might add.
They recently held their
first annual awards ceremony to honor
some of their members and advocates. The
reception also paid tribute to Lynell
who is the founder of the program in
addition to their very generous sponsor
Attorney Douglas G. Andrews, Sr. On
October 23rd they will have a float in
the Springfield parade and have
tentative plans to have a booth to
provide education and awareness to their
organization and what they provide.
The on-line community
offers a multitude of services ranging
from member support should members need
to talk, vent or share their own
personal experiences and dilemmas. They
offer computer education to assist and
teach members how to better utilize
their skills via the computer.
Additionally they are seeking endowment
grants, which would be used solely to
further the organization, and it should
be noted that their server allows a text
to speech program affording members the
chance to be involved should they have
issues with speech. They are of course
always looking for volunteers in various
aspects of the program such as with
public relations and additional
advocates.
They currently need the
services of several pastors so that
their program can offer Sunday Services
and Bible Studies for any member who is
unable to attend church and several
computer able individuals to assist with
domains and web design needs.
Finally, they are in need
of medical professionals who would be
willing to write brief articles from
time to time on topics related to their
profession to guide and assist members.
John and Lynell have been together for
four years now and have been by each
other’s side from the start. Lynell
was born with cerebral palsy and has a
twenty-year-old son who lives in South
Carolina. She was diagnosed with breast
cancer in 2003 and has been cancer free
now for twenty-nine months.
Jay was with her all the
way and even shaved his head when she
lost her hair to chemotherapy. Jay was
born with spinabifida and osteomyelytis.
He has a prosthetic leg and has had 66
major surgeries. When he was three and
she was six they actually went to the
same therapist. Lynell’s father was in
the military and they settled in
Savannah in 1984.
Her parents have been a
strong support system for her in that
they have always told her that she was
an angel sent to them from heaven. She
herself has had twenty-three surgeries.
Lynell’s sister, Nita, opened a
writing school for the blind in 1996
with the intention of providing children
a better quality of life and a
heightened awareness of their
surrounding consequently building upon
their own natural abilities.
Unfortunately, she passed away in April
1998 and Lynell was devastated.
Nita is the driving force
behind Lynells’s passion for this
forum. Her vision was to be able to do
something for people who have
disabilities, to give them a voice. She
is very pleased with the accomplishments
of the community and realizes that it
will take some time for it to blossom
into what it should be. She says “God
is going to give us plenty of time to do
what we need to do.”